Thursday, February 20, 2014
seriously? no really. SERIOUSLY?
Sunday, February 09, 2014
so tired I can't see straight
The first transfer cycle failed. No idea why - good embryo, good uterus... just didn't grab on. When I heard, I was surprised to find I was 15% sad, 75% angry and 10% relieved. Why sad? Well that's self evident. Why relieved? Well because I know just the pregnancy itself (not to mention the actual child) will completely turn our lives inside-out and, like all prospective parents, we do get nervous about what that'll look like for our jobs, marriage, sleep, finances, ect.
But why mostly angry? Well I'd just read an article on the NYTimes "Fertility Diary" series titled "How Much Would you Pay for a Baby." And it exactly described how I felt and why I was so angry. I'm NOT a gambler - last time I was in Vegas was on a research trip and I played nickel blackjack 'til I got my free drink and then left.
But this time we'd put our money on black and lost. It's hard to estimate exactly how much we lost... somewhere in the neighborhood of at least $20k when you figure the embryos cost approximately $10k each to make and the fertility clinic costs are about $10k each try. Of course that doesn't get into all the other costs of lawyers and travel time and thank you gifts for my friend, but you get the picture. And sure, it's not all our money - as I mentioned in my last post we're using part of my inheritance so it's not like we're going hungry over here. But STILL. That's just a lot of money to lay out for absolutely nothing, well except the pleasure of getting kicked in the nuts. Because of course, that's the other thing we lost... hope. After seeing a cycle fail, it became hard to see this process as anything other than a very long and painful slog. You stop thinking about how awesome it'll be to have a child of your own and start thinking about how much it's going to suck to keep going through this again and again and again.
But practical people that we are and knowing that it's about a 50/50 chance each time, we said we'd ante up again. Great, our doctor said! Next cycle starts in mid January with a transfer date of February 7th. We took a break from thinking about all this over the holidays and honestly felt a bit saner after a month.
And now we're in the thick of it again and, true to form, this cycle's been absurdly challenging from start to finish. Each weekly checkup for our gestational carrier been screwed up by some ridiculous bookkeeping error. They didn't send out the initial instructions because our "coordinator" was away. The monitoring clinic canceled for Chinese New Year but we were told a different day so then both days had to be rescheduled. And then, like the fucking cherry on top of the sundae, on Thursday night, our clinic called and said the our carrier's day-before labs looked off and we may not be able to go through with this cycle. So on Friday we all drove the 2 hours to the clinic, assuming we'd only double check the labs and then be told to go home - sorry about that $3k of monitoring fees, play again next month! And then the labs were fine and we went ahead and did the transfer as planned. Well, except with a lot more sobbing from me because COME ON! Jerk me around a bit more while you're at it universe...
And so we wait. One day down (the only day that actually matters of course - it's either stuck by now or it hasn't) and only 12 more to go! Whee.
I'm scared it won't work (of course) and I'm scared it will. If it works, I then have to make it 9 long months with my kiddo in someone else's body. The further we get into this, the scarier that seems. I've gotten a pretty good look at myself throughout this whole process and I've learned just how hard it is for me to put my trust in others. I absolutely trust my friend to be a good carrier. However, that doesn't mean that every single day she carries that baby, a very good chunk of by brain is going to be pre-occupied with how they're doing.
So in summary:
Give me our baby NOW.
We've been really patient.
And I'm not sure how much longer we can wait.
We're both getting incredibly tired.
Saturday, November 09, 2013
so scared I can't see straight
Friday, June 21, 2013
so mad I can't see straight
So back in good 'ol March of 2008 when we learned we couldn't have kids, we kinda got pretty sad about it. That took a while to deal with. Depression doesn't go away in a day. So we focued on enjoying our new house and each other's company and basically - we table the whole kid discussion completely.
Fast forward to 2010 and we're starting to feel a bit better about life. Maybe we'll adopt, we think. A couple different friends are doing it... but every time we talk to them about it, it sounds SO hard. And let's be honest. We're really tired at this point. It's been a really hard decade and we're just not sure we're up for more and more and more disappointment. We'd really like to have at least one family member that doesn't have a history of abuse or neglect. Them therapy bills - them get spendy. Oh and did I mention that any reputable adoption agency would look at a crazy lady like me and laugh...
But then, in 2011, we realize: hey! You don't have to adopt a fully born person - there's this thing called embryo adoption. It's really much easier legally all the way around. And the added benefit is then my husband and I are on equal terms - neither of us is related to the kid - it's like adoption but with less paperwork! Pop one of them in me and we're good. But, says my husband - can we wait just a year or so? I'm at a really, really, REALLY, important juncture in my career and I don't have 10 seconds of free time to even think about this. 110% of his bandwidth is spoken for. Fine. What's one more year?
And then (because, OF COURSE) the stress of everything just finally reaches some kind of tipping-point-broken-camel's-back straw and I get sick AGAIN. Not crazy in the good 'ol fashioned, just pop some lithium in her and she'll be right as rain again sick. Sick like "we think you might have lymphoma" sick. Turns out I don't have lymphoma or lupus or lyme or any of the other horrible things. I have Chronic Fatigue. What is that, you may ask? Well, there's a whole division of the NIH currently trying to figure that shit out because no one knows. My interpretation: your stress level gets so high your immune system tries to attack itself. Fun times.
OK, so I deal with a year of feeling like I have the flu and finally convince my doctor to get me some Xanax and presto - yet another major hurdle in life cleared. I'm feelin' fine and the husband's major work turning point has been passed with flying colors and it's time to decide what to do. I run into my best friend and she asks "hey, isn't it time to decide what to do?" "Yeah, I say, we're thinking embryo adoption and since I just got stabilized on this medicine, we'll hire a surrogate." "that's crazy - I'll do it!" she said. Done and done.
Except. Except.
Our doctor doesn't want to. He's uncomfortable with no one being the genetic parent. He's worried we might just walk away and abandon the child at the hospital. Although he and my husband are colleagues and we're all neighbors and live in the same town and we typically spend $1000s when our dog gets any kind of boo-boo, we're ethically sketchy to him. Maaaaybe, his team will consider it he says. Maaaaybe if we sign away all rights with the lawyer and agree to take the baby no matter if it has 15 arms and 25 heads, he'll consider it. He'll be in touch he says. Before July 4th because then he has to go to a conference. If he won't do it we can just truck ourselves and our surrogate 3 states away to another place that will. NBD - he doesn't have to buy the plane tickets or get babysitting for my best friend's kids.
Ass.
Hat.
And all of this would be one thing if he were right. But according to our lawyer, he's not. He's dead wrong. The law would make us the legal guardians. He's just squeamish and hidebound and basically, a risk-adverse jerk-ass. Because we have disabilities, we don't get the same basic rights as everyone else.
Cock.
Waffle.
Did I mention we adopted a dog? She's very nice. We like her a lot. She ate a toxic mushroom last week and we spent $800 restoring her to health. But we're the ethically sketchy ones who abandon the helpless at the drop of a hat.
Fuck.
Wad.
Friday, April 22, 2011
To Stick
- The world fell apart on 9/11
- I walked away a career I’d been building for 20 years
- I went completely crazy and had to be hospitalized for over 2 straight years
- I was arrested
- We were POOR
- We moved every 2 years on average - once, across a continent, leaving everyone we knew
- We learned we could not make babies and fell apart for a while
- We bought a house
- We built 2 careers with some success
- We decided that our families are unsalvageable and destructive forces in our lives
- We discovered that one of us has an orphan disease
- We spent SO MUCH money on therapy…
Wednesday, March 23, 2011
The Collector
I have a new diagnosis (or two)! More to add to my collection! So far I’ve been told I have:
- Major depression
- “Double” depression (major + dysthymia)
- Alcoholism
- Borderline personality disorder
And now, drum roll please:
- Generalized anxiety disorder
- Obsessive compulsive disorder
Frankly, I think all these diagnoses are sort of all bullshit at this point. I know I’ve met the diagnostic criteria for all of them at one point or another and I currently meet the criteria for GAD and OCD, hence the new “diagnosis.” But honestly, these don’t mean anything to me anymore. Nor does the DSM mean much to me these days. I know what I have and I know how to fix it (brains + cash + support + time).
Yet when my doc sprung this on me yesterday, it was still a disappointment. Half: “well, of course” and half “oh no, not again.” He wanted to leap right into a discussion of treatment options and therapeutic interventions and I was like…. Stop. Let’s just process the fact that you’re saying this to me. Let’s just process what this MEANS and feels like. Let’s start with identifying what was the chicken here and what was the egg.
I dunno, somehow, it’s really important for me to understand what came first. If you had cancer, you’d want to know that it was the chemo that was causing your nausea, not the cancer or some other, horrible, underlying illness. And I kind of think that this might be what’s happening here: getting better is causing some things to get worse. It’s like trading one, horrible debilitating illness for four, smaller slightly less annoying ones. Watch:
Age 0-7:
I know I started with a genetic susceptibility towards emotional sensitivity. I own that. I’m sensitive in all the good and bad ways that word connotes. I’m also creative and intelligent – another asset/liability depending on what day it is. Growing up, my home environment preys on this. My parents’ inability to regulate their emotions spilled over and made me even more hyper-vigilant. Their invalidation & narcissism alters my perceptions of the world and necessitates coping mechanisms like dissociation and near-psychotic (albeit creative) interpretations of reality. (I cannot control trees, no matter how much I believe I can. (I think.))
- Diagnosis at 7: gifted
- Treatment: play Battleship with the school shrink
Age 8-14:
Now, add to this mix an actual, tangible reality that I had to LIVE in every day with things like school and peer pressure and adolescence and loss… and I get pretty worn out. It’s hard to be the crazy one. It gets old. I want to escape. I think about death. A lot. Remember, the rules don’t apply to meeeee!
- Diagnosis at 14: major depression
- Treatment: go directly to hospital. Do not pass go. But maybe stop in at your local liquor store.
Age 15-27:
Wow. That whole crazy/hospital thing really got everyone’s attention. Maybe a bit too much… but, WOW. I’m gonna tell everyone I meet about THAT. Maybe even make it my new “thing.” Oh, and alcohol works great!
- Diagnosis at 27: double depression & alcoholism & borderline
- Treatment: how much money have you got? Double it and mail directly to the nearest mental health provider. Also: cutting releases endorphins! Do that.
Age 28-36:
So. Maybe I went a bit overboard… That whole crazy thing tends to make nice things like husbands and jobs and car keys disappear. Maybe I should try getting - and then keeping - my shit together. But to do that, I’ll have to hold on tight. Really dig my nails in deep and keep everything under perfect lock and key. Measure it out to the nearest microgram. And worry. Don’t forget a heaping spoonful of worry. That’ll help the medicine go down.
- Diagnosis at 36: GAD & OCD
- Treatment: to be determined.
Saturday, March 19, 2011
Groups
I’ve done a LOT of group therapy in my life. Of course there were the endless hours of groups that came with every inpatient and partial hospitalization. There were various outpatient DBT groups, various AA meetings and even one outpatient CBT group. But nothing – nothing held a candle to the group my friends and I created on our own.
We all met in a PHP program run by a local hospital. It was a pretty good program, as these things go. There was the usual drama. A girl that no one liked killed herself. The damned “movement therapy” people forced us into sing-a-longs (with tambourines) in the middle of a day that bruised our self-esteem. There were insurance battles. The DBT therapist had a newborn and was so sleep-deprived that she couldn’t run a group to save her life. One of the social workers looked like a hobbit. We tried not to look enviously at the other outpatient programs for medical issues that looked better funded and frankly, cleaner.
Eventually though, the program ran out for all of us (did I mention the insurance battles) and we tentatively agreed to try and keep meeting. Maybe every couple of weeks, we said? A potluck at one woman’s house? We did it and it went WELL. Then one night, at the last minute, we couldn’t get in touch with our host. She was busy trying to kill herself we later learned. When she got out of the coma we started meeting again but now on a weekly basis.
Every Friday in Alameda we sat for hours and hours and listened patiently to each other. There were 8 of us. I was actually the youngest at 31. Everyone else was somewhere between 40-60. But it didn’t matter. We all had some variety of depression. Others had some axis II stuff going on and maybe some substance abuse thrown in for fun. But we all had something in common: at one point, all of us had wanted to kill ourselves and we just wanted to keep each other ALIVE. It became a support group for people addicted to the idea that suicide was an answer.
I’m going to stage a reunion in May when we go back for a visit. It’ll have been almost 4 years since we were all together. I’ve missed them all so much.
All of them.
All of us are still alive.
All of us.
Sunday, February 13, 2011
Worst day
I’ve had a lot of “worst days” in my life. Some of them were clearly terrible horrible days:
- The birthday my dad strangled me
- The day I tried to go to high school but was hospitalized instead
- The day they locked me in isolation
- The day I tried to die but was arrested instead
- The day I help my first set of commitment papers
- The day I tried to go back to the hospital voluntarily but was arrested instead
- A couple days later when the PHP I’d been attending for 1.5 years kicked me out over the phone for the above incident
On all these days, the defining characteristic was the sense that reality had completely broken down. Suddenly, all light and air was bent, as if through a lens. Anything off to the side was clouded in a blur but those things immediately in front of me seemed crystal clear. This Terrible Thing was happening and I could perceive every last detail of it in painful detail. I remember the way those rooms looked. The cracks on the ceiling of the first hospital’s admitting room. The size of the piece of birthday cake in front of me. The feel of the black, metal pay phone in the hallway of the hospital. The way sound reverberated off the Plexiglas window of the Side Room.
Sometimes this fracture of the fabric of space was helpful – a reminder that this shit wasn’t going to work anymore. There was something I was doing that I needed to Knock OFF. Get away from my parents. Get away from these hospitals, these policemen. These were not moments where I should linger.
Other times, it just felt as if I were living through a traumatic brain injury – a concussive blast in slow motion that was gradually creating tiny shears throughout my grey matter that would never heal. Afterwards, nothing would ever quite be the same - like an indelible mental limp.
I had one of those days a couple weeks ago. Nothing dramatic like a hospitalization or an arrest, just a horrible, horrible day where literally every possible thing that could go wrong did. All throughout, I tried to remember non-dramatic terrible days like this that I'd survived to tell about before:
- The day snow chains ripped out the ABS on my sports car just before my skis were stolen
- The handful of horrible, terrible, cry-all-night fights we’ve ever had as a couple
- They day we were thrown out of a B&B and went wandering across the muddy Scottish countryside, looking for a place that didn’t exist
- The day I met a professor who was having the kind of architecture career I wanted and realized I wasn’t nearly strong enough to do that
On all those days I still felt the same brain-splitting panic, the same cognitive overload during each of them. The feeling that
This. Is. A. Crisis.
And You. You are not capable of handling such things.
What happened a couple of weeks ago? It’s barely worth mentioning. I got up early to drive my husband to the airport through a snowstorm so I started the day exhausted. I drove to work a couple hours later through a subsequent ice storm to arrive at work a scared, angry mess. I returned home at 9:30 to discover that we had what I thought was a propane leak (terrifying) but turned out to be an empty tank (infuriating). For three hours I ran around the yard in the dark and freezing rain, calling anyone I could think of who could help, digging feet of ice and snow off of every surface, worrying that I was about to blow all of our worldly possessions and myself and the cat, sky high. I felt alone and terrified and confused.
- How could all this be happening and why had the fates conspired against little old me?
- How did I wind up so alone?
- Why did time and space seem so flexible and tangible all of a sudden?
- Why did everything seem so muffled and how long had I been shoveling?
And by the end when the heat was back on and my head was throbbing and sleep and food seemed like irrelevant novelties, I sat with that familiar old feeling: I don’t know how many more days like this can I face.
Saturday, January 29, 2011
hidden in plain sight
It has been an extremely long time since I last posted. I didn’t exactly abandon this blog so much as I forgot I HAD a blog.
Why…? Well, I’ve been in hiding. Not any kind of witness-protection, government-sponsored kind of “official” hiding. More like hiding from the world and everything in it. If you recall (why would you – it’s been 3 years) we received some bad news in early 2008 that we could never have children of our own. It was devastating in a fuck-this-shit-I’m-giving-up kind of way. And giving up looked different for each of us. For me it looked like: bury self in job and wifely tasks. I figured if I could just dig myself a predictable little groove then nothing (good or bad) could ever find me and I’d be safe from future disappointments. Don’t get me wrong, it’s not like I stopped answering the phone or taking vacations. It was more of a mental program to keep me busy so that I didn’t have to think or feel:
8-9am: get up, make coffee, feed cat, kiss husband good-bye as he leaves for work
9am-12pm: work on computer
12-2pm: shower, eat leftovers for lunch, drive to work
2-7pm: work at work
7-9pm: drive to gym, workout while reading iphone, drive home, shower
9-11pm: eat dinner while watching DVR’d shows, work on computer more
11pm-8am: read in bed, sleep
Repeat as needed. On weekends I just replaced work at work with housework and voila! A pattern that allowed me to fill all mental space with work and the other minutia of life. Have I been productive at work – absolutely. They’re delighted with the robot they hired. My boss said yesterday that he wishes modern science had progressed to the point where they could clone me. Have I kept a well run home – yes. Our house and personal finances are tidier than 99% of Americans. (that remaining 1% are people that live in those little mobile 200 square foot homes and own two changes of clothes – oh how I envy them…) But have I really been living the last couple of years? No. I’ve been hiding, afraid to even turn on a radio station for fear of what havoc that unoccupied mental space will wreak.
So what is it that I’m so afraid to think about? How about the final, unassailable realization that despite all our efforts, we have become the local weird-o’s; different enough from the rest of society to no longer take pleasure in any of the things that mankind has created to entertain/distract ourselves from the fact that life is nasty, brutish and short. About the only things that seem to make us crack a smile are old Simpsons reruns, the odd Robot Chicken Sketch, theoatmeal and some old George Carlin videos. The only things that hold our interest are long, complicated movies, work, books and the Internet. We have jobs that are purely academic – we trade purely in ideas – which is pretty different from most of 2011 America.
We don’t have kids so that immediately alienates us from our now child-obsessed culture – oh, and not to mention all our friends who are knee-deep in exactly what they should be at this point in their lives: child rearing. Add all this to the years of trauma we’re both recovering from and well, we don’t feel like we fit in ANYWHERE.
I have a desire to return to the world of the living. I do. But this desire is consistently derailed by the reality that life just keeps getting harder and harder and harder. The easiest way to deal with the mounting difficulty is to lose myself in the program. Lather, rinse, repeat. Lather, rinse, repeat. Put on movie, zone out, go to bed. Turn on computer, surf around, go to bed. Take on more work, look up, years have passed.
Sunday, October 12, 2008
Blame v. Shame '08
But I don’t even like listening to people argue on the radio. One thing that’s bugged me since I moved to the east coast is the predominance of call-in shows on the local NPR station. In California, it seemed like there were more informational programs. I figure, I listen to the radio to hear a summary of what the most intelligent people are saying about a certain issue. If I wanted to hear what some idiot with a phone who couldn’t formulate an idea to safe his life thought, I’d go to the local hardware store. I can’t stand listening to people go back and forth, back and forth without there being a clear winner. Surely someone must be able to make a complex and well-stated argument these days? It seems like nobody puts any thought into how they put their point across.
But I know that I’m a rare case – someone’s who’s almost allergic to conflict. I hate making even the smallest mistakes because I assume someone’s going to take issue with me. If only it was within my ability to just do everything perfectly, then nobody would ever have a reason to fault me. But perfection isn’t attainable and someone’s always going to judge you.
I’ve been worrying a lot this week that our neighbors are judging us. We had to cut down a very large, very pretty, very old tree that sits smack dab in the middle of our front lawn. It wouldn’t be so bad except that we live on one of the major streets in town – right on the scenic route that winds along the shoreline. Dozens of runner, bicyclists, and classic cars roll by every day. I was sitting in my living room this morning, watching the people go by and thinking about how we need to get the curtains hung. Because, now that we’ve chopped down the tree, I can’t stand the audience. Before, when people went by, I liked thinking about how they saw our house. It’s very cute and scenic and I liked to think they were admiring it and maybe even a tiny bit jealous. Now, I wonder if they’re thinking, “Those young whippersnappers – they cut down that historic tree. Obviously, they have no respect for anything and they’re going to just destroy that property.” I drove through the center of town this morning and saw a bunch of people talking in front of the hardware store. I wondered if they were talking about those weird new people who cut down that gorgeous old tree – didja see it? I’m almost expecting an angry note in my mailbox. I feel like I want to post a sign on the front lawn that reads: “I swear, the tree was dying and was a hazard and we hated to cut it down and we promise that we’re going to plant another one soon!” And then next to it, there would be another little sign that read, “No, we are not selling firewood.”
Monday, August 25, 2008
Where's the fire?
I had a lot of goals for this year – things I wanted to accomplish, changes I wanted to make. And I accomplished a LOT of them:
- We bought (and moved into) a house in a cool little town
- I made some new friends
- I found two good therapists
- I moved my piano here and started practicing again
- I found a new job that I like and that pays well
- We switched to all eco-friendly cleaning products
- We got to know (and spend time with) our 2 year-old nephew
And when I look at that list – it looks like a LOT! Big stuff too. So, why is it that I only focus on the goals I haven’t accomplished?
- I wanted to get down to Manhattan and see old friends
- I wanted to travel (visiting my parents doesn’t count)
- I wanted to volunteer and become active in the mental health consumer community
- I wanted to hike and bike and paddle and get outside
- I wanted to finish my book
- And join a choir
- And eat local and healthier
- And, of course… I wanted to exercise more
I see other people doing these things I want to do and I get jealous. And then, instantly, I switch and judge myself. I call myself lazy. And then I try to do more.
Sometimes, I think it’s great that there’s so much I want to accomplish in this life. I’m glad that I’m passionate and engaged and have so many interests. And sometimes, I think I just need to RELAX. What is the big, fat rush? I’m only 33. I’ll get around to everything. Maybe it’s a vestige of being suicidal for most of my life.
Sunday, August 17, 2008
Just like everyone else
In general, it's been a nerve wracking experience. We’ve been renting apartments since college so we haven’t had to fix a faucet, mow a lawn or paint a wall in a very, VERY long time. It’s been a scary process - there’s so much to learn. We’ve had to learn about mortgages, taxes, septic systems, and home-owners insurance. They all seemed like stressful, grown-up things. What if you get them wrong? What if you make the wrong decisions? It was a lot to think about. It’s almost so much that some days, I didn't want to bother. I just wanted to curl up and stay in an apartment forever.
But, everyday, for some unknown reason, I didn't give up. I keep searching online for the best house. I kept driving around neighborhoods and talking to friends and going over our budget. At night, when I should've been sleeping, I thought about gardens and curtains and all things I needed to learn about. But something, some deep-seeded drive, kept pushing me to become a homeowner. I think that there’s a part of me that saw buying my first home as a rite of passage. It’s seemed like a necessary step to becoming a full-fledged adult - and I was curious to see what THAT was like.
And so we found a house - and fell in love. It's a beautiful house in a beautiful place. It's way better than we ever thought we'd have. It's like someone decided to make the perfect house, then put it on the market, and waited almost a year until we came to find it.
So we're learning - what it's like to be a homeowner, a member of a town. I keep wondering - will we develop a kinship with the people who have lived in this house over the last 150 years, with the people down the street? We’ll get to go to town hall meetings and decide if our tax dollars will pay for that addition to the library. We’ll get to rake leaves and plow our driveway and buy appliances and do all those things that everyone else does. Everyone else.
Today we bought mulch. It was wonderful.